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© British Association of Social Workers

The Effect of Huntington's Chorea on Family Life

JACQUELINE KORER and J. S. FITZSIMMONS

Jacqueline Korer is a Research Associate in the Department of Psychiatry, Manchester University. She has previously done research into the social consequences of schizophrenia, other severe psychiatric disorders and Huntington's Chorea and has published several papers in these areas. She is currently investigating the nature and extent of psychiatric morbidity in the clients of social workers.

Dr. J. S. Fitzsimmons, is Consultant and Director for the Department of Clinical Genetics, City Hospital, Hucknall Road, Nottingham, NG5 1PB, and is the author of Handbook of Clinical Genetics, Birth Defects etc.

Summary

This paper examines the effect of Huntington's Chorea (H.C.) on family life with particular reference to the consequences for the spouse of the H.C. patient. It describes in some detail the marital and parental difficulties encountered and confirms the severe familial disruption that occurs. It suggests that families or individuals segregating this disorder can be usefully divided into two categories of behaviour which are referred to as ‘H.C.-orientated’ and ‘independently-orientated’. It is further suggested that for purposes of practical management and in the hope of avoiding the process whereby families become H.C.-orientated, these families require and should be offered on-going social-work support from the time a family is recognised as being at risk of H.C.


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